Supportive Care for the Person with Dementia

Contains the views of both carers and of a person with dementia Contains a broad perspective, looking at a variety of different types of dementia and includes perspectives from different countries, including from developing countries Moves through a variety of different perspectives on dementia, reflecting physical, psychological, social and spiritual concerns Supportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for an inter-disciplinary approach and for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application. Supportive Care for the person with dementia provides just such a broad and full perspective, drawing upon the experience and expertise of a wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia. Making use of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of this type can bring to the complex problems that are frequently encountered when treating this condition. It is an ideal resource for all clinicians who are part of an interdisciplinary team caring for sufferers with this debilitating illness. CONTENTS 1: Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs: Characterizing care 2: David Jolley: An introduction to the dementias: a clinical view 3: Daphne Wallace: The view of the person with dementia 4: Barbara Pointon: The view of the family carer 5: Joseph W. Shega and Greg A. Sachs: Offering supportive care in dementia: reflections on the PEACE programme 6: Bob Barber and Helen Cooper: Services for younger adults with dementia 7: Belinda Bilney and Meg E. Morris: Huntington's disease and dementia 8: Mary Ann Cohen and Charles E. Schwartz: Patients with HIV-associated dementia 9: Heather Wilkinson and Karen Watchman: Down's syndrome and dementia: a framework for practice to support people with Down's syndrome and dementia living in generic care homes 10: Sivaraman Shaji: Dementia care in developing countries 11: Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs: Ingredients and issues in supportive care for people with dementia: summarizing from models of care 12: Clive Ballard and Dag Aarsland: Pharmacological management of neuropsychiatric symptoms in people with dementia 13: Elizabeth L. Sampson: Hospital admissions in dementia 14: Alice Jordan and Mari Lloyd-Williams: Distress and pain in dementia 15: Gillie E. Evans and Louise Robinson: The role of the family doctor in supportive care for people with dementia 16: John Keady and Philip Hardman: Community mental health nursing and supportive care 17: Graham Stokes: From psychological interventions to a psychology of dementia 18: Jill Manthorpe: Supportive care: social care and social work approaches 19: Katherine Froggatt and Deborah Parker: Care homes and long-term care for people with dementia 20: Philip D. Sloane and Sheryl Zimmerman: Assisted living programmes providing supportive care for dementia 21: Stephen Sapp: Spiritual care of people with dementia and their carers 22: Jacquelyn Frank: Anticipatory and disenfranchised grief among dementia family caregivers: helping spouse and adult/child caregivers to cope 23: Kate Allan and John Killick: Communicating with people with dementia 24: Steven R. Sabat: Maintaining the self in dementia 25: Murna Downs: Person-centred care as supportive care 26: Clive Baldwin: Narrative, supportive care, and dementia: a preliminary exploration 27: Wim Dekkers: Persons with severe dementia and the notion of bodily autonomy 28: Muriel R. Gillick: Advance care planning: an American view 29: Cees Hertogh: Advance care planning and palliative care in dementia: a view from the Netherlands 30: Adrian Treloar and Monica Crugel: Living and dying at home with dementia 31: Joyce Simard and Ladislav Volicer: Namaste care and dying in institutional settings 32: Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs: The principles and practice of supportive care in dementia